Job Description

Executive Director of Nonprofit Leadership and Advocacy

About the Company

A globally recognized association dedicated to supporting patients with histiocytic disorders.

Industry
Executive Office

Type
Non-Profit

Founded
1986

Employees
1-10

About the Role

The organization is seeking a passionate and visionary Executive Director to lead our global nonprofit dedicated to empowering and supporting patients with histiocytic disorders. In this pivotal role, you will be responsible for the overarching leadership and management of the organization, driving strategic initiatives, and serving as our primary spokesperson. We require a dynamic advocate with a proven history in nonprofit leadership, fundraising, and community engagement.

As the Executive Director, you will craft and execute a comprehensive fundraising strategy, manage financial stewardship to ensure sustainability, and maintain high-quality programs that effectively support both the patient and medical communities. If you are committed to addressing the unique challenges faced by this community and have the drive to make a significant impact, we want to hear from you!

Qualifications:

• Bachelor's degree, preferably in healthcare management, public health, or nonprofit administration.
• Minimum of 5 years of responsible leadership experience in nonprofit management.
• Demonstrated success in fundraising, public relations, and program development.
• Strong background in grant writing, donor relations, and innovative fundraising strategies.
• Exceptional communication skills and the ability to inspire and mobilize a dedicated team.
• Experience in advocacy, particularly in the rare disease or chronic health condition sectors.
• Deep commitment to the challenges faced by patients and their families.
• Operational excellence, emotional intelligence, and proficiency in relevant technologies.

Travel Percent
Less than 10%

Functions

• CEO/President
• Non-Profit Management

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